GENERAL MEETINGS HELD: The Sarcoma Coalition meets quarterly throughout the year. Experts in various facets of the medical field offer presentations and discussions during the meetings. From the discussions, project Initiatives may be formulated during Roundtable group discussions for strategic planning and execution of special projects that are agreed upon by the Coalition membership to enhance patient care and treatment.
-> Meeting dates for 2026: Jan 15, April 16, July 16, October 15, 2026 – 4 PM ET <-
Contact Erin Miller, Allan Swartz, Meredith Berger, or Aidan O’Brien, Steering Committee Members of the Coalition for Agenda ideas you may have for the scheduled meetings.
2026 Updates:
Sarcoma Coalition’s Strategic Planning Meeting –The Sarcoma Coalition Steering Committee discussed plans for 2026, including a new Community Think Tank Network for patient advocates. Nine key topics emerged from patient discussions, including concerns about side effects, telemedicine access, trial design, and inconsistencies in pathology and imaging reporting.
Past meetings included speakers:
Sarcoma Coalition Speaker Spotlight
2021:
1-21-2021- Nancy Goodman- Kids V Cancer- Cancer Legislation
3-18-2021- Dr. Nilsa Ramirez-Pathologist-Nationwide Children’s Hospital-Biospecimens for Research and Clinical Care
5-20-2021-Dr. Jason Hornick-Pathologist-Brigham and Women’s Hospital-Sarcoma Soft Tissue Tumor Overview
7-15-2021-Dr. Mihaela Druta-Moffitt Cancer Center-Telemedicine
9-16-2021-Shannon von Felden – Director, Rare Disease Legislative Advocates at EveryLife Foundation for Rare Diseases-21-Telemedicine legislation discussion with the Sarcoma Coalition
12-2-2021- Dr. Ishwaria Subbiah-MD Anderson- Topic: Palliative Care
2020:
1-16-2020- Ken Culver-GlaxoSmithKline-GSK Sarcoma Gene Therapy
Marcie Reeder-NCCN Foundation-NCCN Patient Guidelines
3-19-2020-SPAEN-Annie Achee
Coronavirus and Sarcoma Patients
5-21-2020- Dr. Abby Sandler & Dr. Karlyne Reilly: MyPART
7-16-2020- Dr. Leslie Doros & Dr. Denise Casey-FDA
9-17-2020- Dana Dornsife & Erin Miller: Lazarex
11-19-2020- Target Cancer Foundation-Jim Palma