2024
October 1, 2024 – The Life Raft Group Launches New Liposarcoma Support Network for Patients & Caregivers – Wayne, NJ – The Life Raft Group (LRG), a leading nonprofit organization dedicated to improving the lives of those impacted by rare diseases, is proud to announce the launch of the Liposarcoma Support Network (LSN), a new initiative aimed at providing essential resources and a strong community for liposarcoma patients and their caregivers. LSN is committed to enhancing the survival and quality of life for people living with liposarcoma through patient-powered research, education and empowerment, and global advocacy efforts, and guiding our journey towards a cure.
Liposarcoma, a rare and complex form of soft tissue sarcoma, presents unique challenges for patients and their loved ones. With limited treatment options and the emotional toll of a rare cancer diagnosis, many feel isolated and unsupported. Recognizing this need, The Life Raft Group has created a dedicated network to offer support, education, and connection to those affected by liposarcoma, and to bring the patient voice to research toward a cure.
A Network Designed for Patients and Caregivers
The Liposarcoma Support Network is a comprehensive resource hub offering:
• Patient & Caregiver Mentor Program: A safe space for patients and caregivers to connect, share their experiences, and support one another one-on-one.
• Support Groups: Encouragement & support for patients and caregivers.
• Personalized Guidance: Assistance navigating the rare disease journey.
• Educational resources: Access to up-to-date information on liposarcoma, including webinars, free patient education conferences, treatments, clinical trials, and expert Q&A sessions.
• Specialists Directory: Providing patients the opportunity to access our longstanding relationships with sarcoma specialists & centers.
• Caregiver support: Specific resources and emotional support for caregivers navigating the challenges of caring for a loved one with liposarcoma.
• Patient Registry Platform: As part of the LRG Patient Registry, this platform will collect the natural history of those living with liposarcoma to provide time-sensitive perspectives on side effects & treatments, and ultimately influence clinical trials & research.
The Life Raft Group encourages patients, caregivers, advocacy groups, and healthcare professionals to explore the Liposarcoma Support Network by visiting www.liposarcomasupport.org/ Social media channels: Twitter: @Liposarcoma_SN | Facebook: @LiposarcomaSupportNetwork | Instagram: @LiposarcomaSupport
For media inquiries or to learn more about the program, please contact support@liposarcomasupport.org.
2023
Winship Cancer Institute – Winship surgical oncologist Kenneth Cardona, MD, has been named Associate Chief Medical Officer for Winship at Emory University Hospital Midtown. In this role, he will help direct clinical operations related to oncologic services and assist the hospital CMO in performing core duties. February, 2023.
Columbia University’s Gary Schwartz named Case Comprehensive Cancer Center’s new director, Case Western Reserve University School of Medicine Newsroom, January 12, 2023.