GENERAL MEETINGS HELD: The Sarcoma Coalition meets quarterly throughout the year. Experts in various facets of the medical field offer presentations and discussions during the meetings. From the discussions, project Initiatives may be formulated during Roundtable group discussions for strategic planning and execution of special projects that are agreed upon by the Coalition membership to enhance patient care and treatment.
2021 Quarterly Sarcoma Coalition General Meetings
The May meeting featured Dr. Jason Hornick, Pathologist, MD, PhD, Pathology at Brigham and Young Women’s Hospital, Boston, MA. Dr. Hornick discussed sarcoma pathology and research updates.
The July meeting featured Dr. Mihaela Druta, Research oncologist at Moffitt Cancer Center, Tampa, FL. Dr. Druta discussed the provider perspectives of telemedicine in the care and treatment of patients and the impediments that detract from quality care. She urged the Coalition to address
needed action to help the patient community.
The September meeting featuring Sharon Von Feldon of Everylife Foundation discussed Telehealth legislation and provided guidance to the coalition on Telehealth support correspondence to the rare cancer caucus as well as other senators and congress members.
SC organizational guidelines were amended for coalition member voting as well as Steering Committee nominations for voting at the December general membership meeting. The Sarcoma Coalition website revision is in progress to be ready in December.
Sarcoma Coalition Speaker Spotlight
1-21-2021- Nancy Goodman- Kids V Cancer- Cancer Legislation
3-18-2021- Dr. Nilsa Ramirez-Pathologist-Nationwide Children’s Hospital-Biospecimens for Research and Clinical Care
5-20-2021-Dr. Jason Hornick-Pathologist-Brigham and Women’s Hospital-Sarcoma Soft Tissue Tumor Overview
7-15-2021-Dr. Mihaela Druta-Moffitt Cancer Center-Telemedicine
9-16-2021-Shannon von Felden – Director, Rare Disease Legislative Advocates at EveryLife Foundation for Rare Diseases-21-Telemedicine legislation discussion with the Sarcoma Coalition
12-2-2021- Dr. Ishwaria Subbiah-MD Anderson- Topic: Palliative Care
1-16-2020- Ken Culver-GlaxoSmithKline-GSK Sarcoma Gene Therapy
Marcie Reeder-NCCN Foundation-NCCN Patient Guidelines
Coronavirus and Sarcoma Patients
5-21-2020- Dr. Abby Sandler & Dr. Karlyne Reilly: MyPART
7-16-2020- Dr. Leslie Doros & Dr. Denise Casey-FDA
9-17-2020- Dana Dornsife & Erin Miller: Lazarex
11-19-2020- Target Cancer Foundation-Jim Palma