The Sarcoma Coalition is committed to support sarcoma research through: Sarcoma member organizations posting research projects that encompass a variety of sarcoma subtypes where collaboration on the Sarcoma Coalition website Message Board to announce:
– Collaborative opportunities to promote sarcoma research initiatives
– Explore co-funding opportunities that may arise through the research community
– Post successful research collaborations on FB and provide alerts for the Sarcoma Coalition newsletters,
with follow-up research collaboration results also posted on the Message Board of the Sarcoma Coalition website.
PDF and QR Code for sharing info about the Sarcoma Coalition:
-> Meeting dates for 2026: Jan 15, April 16, July 16, October 15, 2026 – 4 PM ET <-
Contact Allan Swartz, Meredith Berger, and Annie Achee (Steering Committee Members of the Coalition) for Agenda ideas you may have for the scheduled meetings.
New Messages
2026
Chondrosarcoma Foundation Initiates a Voluntary Tissue Donation Biobank with the Fred Hutchinson Cancer Center – The Chondrosarcoma Foundation is joining forces with the Fred Hutchinson Cancer Center in Seattle, WA to build a biobank with genomic and transcriptional data. The overall objective of this project is to establish a comprehensive bioresource platform for chondrosarcoma that integrates multi-omics profiling, biospecimen banking, preclinical model development, and open data sharing.
To enroll: 1. Go to: https://csfshayna.org/CS-Biobank/ 2. Complete and Submit the Short On-line Application 3. You will be e-mailed a link to an on-line Informed Consent Form from the Fred Hutchinson Cancer Center 4. Complete, Docusign and submit the form as instructed. That is all patients need to do to participate. Staff from the Fred Hutchinson Cancer Center will send a kit to the Treatment Center you indicate to collect their tissue.
– Past Messages –
ZOOM July 22nd, 7PM ET. – Alll sarcomas are welcome to this virtual conversation! The LRG’s Rob Taylor discusses his journey with a rare cancer in partnership with Black Health Matters. Join this virtual conversation with Simone I. Smith and Leighton Elliot on how patients & caregivers can navigate sarcoma cancer. https://us06web.zoom.us/webinar/register/WN_7sWd2bNeTCqSctCb9AQ8Ng#/registration
The Liposarcoma Support Network and The Life Raft Group are hosting a Life Fest 2026 weekend event in Nashville, Tennessee – July 10-12th. Two tracks of educational presentations will be available for GIST & SDH-deficient GIST patient & caregivers and a separate, specific track for liposarcoma. Sarcoma experts and medical professionals from around the US and England will be presenting and participating in Q&A panels. Meet the experts and #FindYourCommunity at Life Fest. Experts are from MD Anderson, Moffitt Cancer, Dana-Farber, Knight Cancer Center, MSKCC, Brigham Women’s Hospital, Moores Cancer Center and Vanderbilt Medical Center to name just a few. Scholarships are available.
Registration for GIST & SDH-deficient GIST – https://bit.ly/LifeFest2026GIST
Registration for liposarcoma – https://bit.ly/LifeFest2026Lipo
Full agendas are available on these registration pages as well as airline & hotel information.
If you have questions about this event, please contact Brian Morello at bmorello@liferaftgroup.org.